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Welcome to the Dystonia Society website

dystonia_explained.jpg
About dystonia
Dystonia is a neurological movement disorder that affects over 40,000 people in the UK.
Find out more about dystonia

Lord Macdonald and Rt Hon. Anne McGuire launch the campaign
Awareness Week, May 2009
We launch our isolated by igorance campaign with the support of our Patron, Lord Macdonald, and the Rt Hon. Anne McGuire. Also author Paddy Doyle, (writer of the best selling 'the God Squad'), writes for us. Find out more...

Dystonia Society helpline staff
Support services and events
The Society has services to support anyone affected by dystonia.
Click here to see our services

Gavin Winbanks

Fundraising
You can have fun and help raise money for the Society. See our forthcoming events and how others have got involved.
Support The Dystonia Society



Call the Dystonia Helpline on: 0845 458 6322

Our Helpline is open Mondays to Fridays between 10am and 4pm and offers an opportunity to discuss concerns in confidence, and to obtain information on dystonia and its various treatments, including ways of making living with dystonia easier.





Welfare grants available
The Society is now able to provide small financial grants towards holidays, respite care and specialised equipment.
For more details


Awareness Week Bike Ride
On the 15th May 2010 we will once again be holding the 25 mile Sponsored Bike Ride around Rutland Water.
For more details


What our members think!
The Society carried out an extensive survey of the issues affecting its 3,100 members in 2008.
Click here to see results


The Dystonia Society, Registered Charity number: 1062595, 89 Albert Embankment, London SE1 7TP, UK.
Phone : 0845 458 6211 Fax: 0845 458 6311 E-mail: info@dystonia.org.uk

Our Support & Information Team is now available to take your calls 5 days a week, Mon - Fri from 10:00 to 16:00.

You can contact them on our new helpline number, which is 0845 458 6322 (local call rate) or on our central office number, 0845 458 6211. 


 
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